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About
"Foundation For A Miracle"
The
"Foundation For A Miracle" was established in 2005. The
purpose of the Foundation is to assist Rochester, NY area families who
have a family member with Friedreich's Ataxia and to contribute
to research that will one day cure Friedreich's Ataxia.
"Foundation
For A Miracle" Universal Individual Application
For Reimbursement Services
 Are you a Family with
Friedreich's Ataxia - Need help with funds - click here for the Foundation
For A Miracle - Universal Individual Application
for Reimbursement Services (A funding source for families with Friedreich's
Ataxia)
"Foundation
For A Miracle" Corporate Application For Research
Funds
Are you a
corporation seeking funding for Research - click here for the Foundation
For A Miracle - Corporate Application for Funds
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What
is Friedreich's Ataxia
Friedreich's
ataxia is a neurodegenerative disease affecting about one in 50,000
people. People who are afflicted with Friedreich's Ataxia have degeneration
of the long nerves of the spinal cord, the cerebellum and the nerves
carrying sensation to the hands and feet. The disease is steadily
progressive and death may occur in early adulthood. While there
is no known treatment or cure for Friedreich's ataxia, worldwide
research is ongoing, and it was only five years ago that researchers
identified the gene that is linked to the disease. Continued research
will hopefully identify ways to minimize the effects of this hereditary
disease. Fundraisers such as this event will continue to channel
money directly to the researchers working so diligently to solve
this disease and to the families who have been impacted by this
disease.
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The
effects of Friedreich's Ataxia vary greatly from one person to another.
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Annual
Golf Tournament
Sat, June 7th, 2008
Golf
Registration Form
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Annual
Golf Tournament
The
Foundation's primary fundraiser is the annual golf tournament.
This year the 4th annual tournament will be held on Saturday,
June 7th, 2008 at Shadow
Lake Country Club. PGA Star Terry Diehl will hold a
short golf clinic before the start of the tournament. There will
be a silent auction and other contests throughout the day. See
details below. Simply print out the Registration Form below, fill
it out and mail it in with your payment.
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Golf
Registration Form
Golf Brochure
If
you would like to be a Foundation for a Miracle Golf Sponsor
please see the Sponsorship Form below.
Golf
Sponsorship Form
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Where:
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Shadow
Lake Country Club |
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When:
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Saturday,
June 7th, 2008 |
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Times:
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10:30am
til noon:
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Registration |
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11:30am-
12:30pm:
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Lunch |
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12:45pm:
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Terry Diehl Golf Clinic |
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1:15pm:
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Shotgun
start |
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5:30
pm:
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Cocktails
| Games | Etc. |
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7:00
pm:
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Dinner |
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10:30
am - 8:00pm:
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Silent
Auction |
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8:00pm:
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"LIVE" Auction |
Awards
and raffle prizes following dinner
Format:
Contests:
- Longest
drive: Men
- Longest
drive: Women
- Longest
drive: Youths
- Closest
to the pin
- Sink
the Titanic (chipping balls into boat)
- 50/50
Raffle
- Lucky
Duck Contest
Additional
Information: If weather causes the golf to be canceled, rain
checks for golf will be available. The dinner, silent auction and
other games will occur rain or shine
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DIRECTIONS
TO SHADOW LAKE GOLF & RACQUET CLUB
1850
Five Mile Line Road
Penfield, NY 14526
(585) 385-2010
Additional information is available at Shadow Lake's web site.
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NOTE:
The use of Metal Spikes is Prohibited
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