Foundation For A Miracle Foundation For A Miracle Foundation For A Miracle Foundation For A Miracle Foundation For A Miracle
Foundation For A Miracle Foundation For A Miracle Foundation For A Miracle Foundation For A Miracle Foundation For A Miracle
Foundation For A Miracle Foundation For A Miracle Foundation For A Miracle Foundation For A Miracle Foundation For A Miracle
Foundation For A Miracle Foundation For A Miracle Foundation For A Miracle Foundation For A Miracle Foundation For A Miracle

About "Foundation For A Miracle"

The "Foundation For A Miracle" was established in 2005. The purpose of the Foundation is to assist Rochester, NY area families who have a family member with Friedreich's Ataxia and to contribute to research that will one day cure Friedreich's Ataxia.

"Foundation For A Miracle" Universal Individual Application For Reimbursement Services
Are you a Family with Friedreich's Ataxia - Need help with funds - click here for the Foundation For A Miracle - Universal Individual Application for Reimbursement Services (A funding source for families with Friedreich's Ataxia)


"Foundation For A Miracle" Corporate Application For Research Funds
 Are you a corporation seeking funding for Research - click here for the Foundation For A Miracle - Corporate Application for Funds

What is Friedreich's Ataxia

Friedreich's ataxia is a neurodegenerative disease affecting about one in 50,000 people. People who are afflicted with Friedreich's Ataxia have degeneration of the long nerves of the spinal cord, the cerebellum and the nerves carrying sensation to the hands and feet. The disease is steadily progressive and death may occur in early adulthood. While there is no known treatment or cure for Friedreich's ataxia, worldwide research is ongoing, and it was only five years ago that researchers identified the gene that is linked to the disease. Continued research will hopefully identify ways to minimize the effects of this hereditary disease. Fundraisers such as this event will continue to channel money directly to the researchers working so diligently to solve this disease and to the families who have been impacted by this disease.

 

FA affects the heart and parts of the nervous system involved in muscle control and coordination.
The effects of Friedreich's Ataxia vary greatly from one person to another.

Annual Golf Tournament

Join Us For The Foundation For A Miracle Golf Tournament

Sat, June 7th, 2008

 Golf Registration Form

Annual Golf Tournament

The Foundation's primary fundraiser is the annual golf tournament. This year the 4th annual tournament will be held on Saturday, June 7th, 2008 at Shadow Lake Country Club. PGA Star Terry Diehl will hold a short golf clinic before the start of the tournament. There will be a silent auction and other contests throughout the day. See details below. Simply print out the Registration Form below, fill it out and mail it in with your payment.

Watch Video - Watch our Golf Tournament video - featuring PGA star Terry Diehl discussing this year's golf tournament with Mark Gruba of NEWS-10 NBC (Rochester, NY).
Click here to watch video of Terry Diehl and Mark Gruba of NEWS10 Rochester...
Terry Diehl

PLEASE NOTE:
You may need a Windows Media Player to view this video. (Chances are your computer came with the tools needed to play this video. However, should you have problems watching the video, please click here to download Media Player for free and try it again.


 Golf Registration Form

 Golf Brochure

If you would like to be a Foundation for a Miracle Golf Sponsor please see the Sponsorship Form below.

 Golf Sponsorship Form

 Shadow Lake Country Club
     
Where:
  Shadow Lake Country Club
   
  When:
  Saturday, June 7th, 2008
Times:
10:30am
til noon:
 Registration
11:30am-
12:30pm:
 Lunch
 
12:45pm:
 Terry Diehl Golf Clinic
 
1:15pm:
 Shotgun start
 
5:30 pm:
 Cocktails | Games | Etc.
 
7:00 pm:
 Dinner
10:30 am - 8:00pm:
 Silent Auction
 
8:00pm:
 "LIVE" Auction

Awards and raffle prizes following dinner

Format:

  • Scramble.

Contests:

  • Longest drive: Men
  • Longest drive: Women
  • Longest drive: Youths
  • Closest to the pin
  • Sink the Titanic (chipping balls into boat)
  • 50/50 Raffle
  • Lucky Duck Contest

Additional Information: If weather causes the golf to be canceled, rain checks for golf will be available. The dinner, silent auction and other games will occur rain or shine

DIRECTIONS
TO SHADOW LAKE GOLF & RACQUET CLUB

1850 Five Mile Line Road
Penfield, NY 14526
(585) 385-2010

Additional information is available at Shadow Lake's web site.

 

NOTE: The use of Metal Spikes is Prohibited

 

 

 

Foundation For A Miracle Foundation For A Miracle
1689 Monroe Avenue
Rochester , New York 14618
585-451-1689